How do you know if you have myositis?

What does myositis feel like?

Myositis is the name for a group of rare conditions. The main symptoms are weak, painful or aching muscles. This usually gets worse, slowly over time. You may also trip or fall a lot, and be very tired after walking or standing.

How do you test for myositis?

Muscle and skin biopsy are often the most definitive way to diagnose myositis diseases. Small samples of muscle tissue show abnormalities in muscles, including inflammation, damage, and abnormal proteins. For those with skin symptoms, doctors often biopsy a bit of skin to examine for characteristic abnormalities.

How long can you live with myositis?

More than 95 percent of those with DM, PM, and NM are still alive more than five years after diagnosis. Many experience only one period of acute illness in their lifetime; others struggle with symptoms for years. One of the biggest problems in treating myositis is obtaining an accurate diagnosis.

What is the most common type of myositis?

Myositis refers to any condition that causes muscle inflammation. Polymyositis and dermatomyositis are the two of the most common types. Polymyositis causes muscle weakness in both sides of the body, usually in the hips, thighs, shoulders, upper arms and neck.

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How did I get myositis?

Infection. Viral infections are the most common infections causing myositis. Rarely, bacteria, fungi, or other organisms can cause myositis as well. Viruses or bacteria may invade muscle tissue directly, or release substances that damage muscle fibers.

What does myositis rash look like?

The rash looks patchy, dark, and reddish or purple. It is most often found on the eyelids, cheeks, nose, back, upper chest, elbows, knees, and knuckles. While the rash of dermatomyositis may be the first sign of the disease, those with darker skin may not notice the rash as readily.

Does myositis come on suddenly?

The muscle weakness may appear suddenly and progress over weeks to months. Additionally, the degree of muscle weakness may fluctuate over time as well.

What part of the body does myositis affect?

The main muscles to be affected are around the shoulders, hips and thighs. Having myositis can also lead to other parts of the body being affected, such as the skin, lungs or heart. Sometimes myositis can affect the muscles that carry out tasks such as breathing and swallowing.

What type of doctor can diagnose myositis?

Many new patients have difficulty finding health care practitioners who know about myositis. Patients with dermatomyositis, polymyositis, or necrotizing myopathy are usually treated by rheumatologists. Those with dermatomyositis may also work with a dermatologist. Those with IBM are often treated by neurologists.

Can you recover from myositis?

As of now, there is no cure for myositis. However, management of the disease is critical in order to reduce inflammation caused by myositis and to prevent muscle weakness from progressing. Further, your doctor will recommend lifestyle changes so you can restore your strength.

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Does myositis go away?

Like other rheumatic diseases, myositis is unlikely to go away on its own. But with proper treatment and management these chronic diseases can be brought under control. At present there is no cure for myositis.

Does cold weather affect myositis?

Getting around is already difficult with a cane, walker, or wheelchair; cold, icy weather makes it worse. Winter weather can also cause isolation for people with myositis who face challenges when traveling outdoors.